One of the issues with having a chronically ill child is dealing with discouragement, theirs and ours. As parents, it is our responsibility and privilege to continuously encourage our children no matter how exhausted we are. We are not allowed to speak negatively as that helps no one. Certainly, we all have bad days, but we must focus on who God is, how God is, His promises and on “whatsoever is good” as instructed in Philippians 4:8. For me personally, I definitely have discouraging days; those where Sophia has had a few really good days and then, bam, she can’t get out of bed because of some infection that hit her from nowhere. With confidence, I know that, if you are a parent or guardian of a chronically ill child, you get discouraged. It is our reasonable responsibility to God, ourselves and our child to locate in our lives whatsoever is good, true, honorable, etc. Believe me, it’s present, we must simply try with a bit more effort than others to find it. We must get our eyes off our circumstances and place them where they belong – on Christ and His Kingdom and what God has to say about the matter.
If your child is still breathing, it’s a good day. If they can get out of bed, it’s a good day. If they can actually attend school, spend some time with a friend or someone with whom they can share some laughter, it’s a good day. We must each find our place in Christ where we are so confident He is sovereign, kind, loving and attending to our needs according to His riches in glory that we do not allow ourselves to be swallowed by the spirit of depression, anxiety, or some form of disillusionment. As for me, I can honestly say, it takes a lot, a whole lot, to discourage me. This is only because I keep my focus on Christ, His Kingdom promises, as well as recalling all I’ve ever experienced with Him in times past. I remind myself of things He has spoken to me, directly or indirectly. I recite the Word in my inner man so that all the negativity of the current day does not overwhelm me. I deal with today today because tomorrow has enough troubles of its own. I choose this because it is healthy (spiritually and physically), I choose it because it is good, I choose it because it is right, and I choose it because I must be an example of faith to my kid as well as onlookers.
Over the years, I have had a few people play the blame, guilt, shame and condemnation game, to which I refuse to participate. It’s from those uber-spiritual folks who are certain they could do better than I and that her illness is all my fault; they love to stir discouragement. I have heard, “You must not be praying right”, “you must have hidden sin”, “you must be speaking the wrong things”, “you must be entertaining demons”, “you must be a hypocrite since you’re a minster and believe in supernatural healing yet your kid is still sick” and much more of the like. These are those who believe that, if healing doesn’t come when or how they believe it should, it must be the parents’ fault.
Those words, if I allowed, would discourage and crush me to my core. But, because I am grounded firmly in my identity in Christ knowing I’ve done everything spiritually of which I am biblically aware, those words wash over me like water off a duck’s back. Believe me, I have questioned myself every which way – all these things crossed my mind at some point.
Parents, if you know who you are in Christ, if you know who Christ is in you, if you walk in accordance to His Word, and have surrendered yourself and your situation to Him, know that God will take everything Satan means against you for evil and turn it, one day, for your good, the good of your child, and the good of the Kingdom of God. Do not allow discouragement to overtake you because it benefits no one. Encourage yourself in God’s Word and His promises. In this, you won’t have to force positivity when around your child; it’ll flow freely from a genuine heart of love, faith and hope.
Philippians 4:8: Finally, brethren (parents), whatever is true, whatever is honorable, whatever is right, whatever is pure, whatever is lovely, whatever is of good repute, if there is any excellence and if anything worthy of praise, dwell on these things.