Encouragement for Parents with Chronically Ill Children

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EncourageWordleCaring for a chronically ill child requires dealing with the school system. I must say that, after six years of Sophia being on homebound, it is still very tricky to handle the school without unleashing a merciless verbal assault on someone; this would come easily to my natural man. It isn’t just the home office but each and every teacher as they are all different people with varying personalities and modes of operation. This year, Sophia’s freshman year, has been the worst dealing with the homebound committee. I have battled against a homebound assigned nurse giving false information leading to the rejection of homebound tutoring as well as false information making things appear one way when they were altogether another. I have had to battle all school year just to attain the proper accommodations for Sophia so as to be able to accomplish her work while in and out of school.

As recently as last week, I had to make a call to both the superintendent as well as a friend on the school board. The homebound board was refusing to grant Sophia homebound hours when she was out three straight weeks. They cited that, because her days were previously excused, they would not accept the newly submitted backdated homebound form so as to get the necessary tutoring to cover those three weeks. When I finally received a call from the head of homebound after she must have received a call from a superior, her response was, “Oh, so all you need are the homebound services? We thought you were requesting her days to be doctor’s excused and they already were.” This was a lie as she knew exactly what I was requesting. Honestly, I cannot for the life of me understand why the school system uses the motto “no child left behind” when they’ve proven time and again they couldn’t care less about my child or her education. There are times over the last 6 years where I have lost my temper in utter frustration listening to them flim-flam their way through the litany of excuses as to why they cannot provide this or that. They love looking good on the surface but, underneath, in my opinion, it’s all about reputation and money.

I say this to say that walking with God and having to confront the school system is challenging at best. As if it isn’t enough having to wrangle with the doctors and their ever changing assessments of what’s going on any given occasion and having to care for my sick child knowing that, in the moment, I can’t do anything to ease her suffering, insult is added to injury having to deal with the school threats of calling truancy if I don’t immediately comply to their system.

I find myself having to regularly and specifically apply God’s Word to my life, my attitude and my overall posture when dealing with the school system at large. I perpetually call myself to accountability so as to not lose my tempter with someone merely delivering a message. I must remind myself they are people too; that the individuals with whom I am dealing are just that – individuals – they are not the system itself. I long to be perfect as Christ is perfect, but there are moments when I lose sight of Holy Spirit, if even for a moment, and have to force myself into obedience to Christ. I surrender each instance to God so I do not become what I hate – a fleshly, worldly, loudmouth mom going off on a tangent. As tempting as it is and as easily as that would come to my natural man, I must resist.

These are some of the lessons within the lessons drawing me closer unto the bosom of God. Choosing to resist temptation at all costs is vital. Though I fail from time to time, God is faithful. I remind myself all things DO work together for good for those who love God and I am in love with God.

James 1:13-16: When tempted, no one should say, “God is tempting me.” For God cannot be tempted by evil, nor does He tempt anyone; but each person is tempted when they are dragged away by their own evil desire and enticed. Then, after desire has conceived, it gives birth to sin; and sin, when it is full-grown, gives birth to death. Don’t be deceived, my dear bothers and sisters.

 

One thought on “Encouragement for Parents with Chronically Ill Children

    RoseAnn Roth said:
    March 6, 2018 at 1:15

    This is so good. You have hung in there and in the end, it will be to your advantage and also God will show through. Good for you to keep fighting for Sophia’s best interest. To God be the glory.

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