Encouragement for Parents with Chronically Ill Children

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I must be transparent. The “mamma bear” Alexys and the “minister” Alexys are often in conflict. As a minister, I purpose to live a life of balance, love, patience, kindness, holiness and to be at peace with everyone, at least as far as it is up to me. Adversely, as a mother of a chronically ill child, I often feel the urge to, at the very least, tell someone off. Or, at the worst, punch someone squarely between the eyes for their neglect, bullying or disregard for my child who only wants to be well and accepted by her peers.

For example (in no particular order):

 

  • Dealing with doctors who pass her around from this one to that one or one questions another’s diagnosis or treatment and look at me as though I’ve done something wrong.
  • When kids her age at school or elsewhere tease and/or bully her because they don’t understand her situation, why she likes colored hair, why she’s so shut down, or why she doesn’t fit the acceptable body image.
  • When the youth pastor at our church refuses, though begged repeatedly over a year, to reach out to her or have girls her age reach out to her. He visited her once, had a couple girls text her a few times and, just like that, she was quickly discarded and forgotten like yesterday’s news.
  • Dealing with the school powers-that-be who threaten to call truancy because they question the word of doctors as though she isn’t really too sick to attend; who demand meeting after futile meeting.

 

In the aforementioned scenarios, yes, I definitely want to scream at and hit someone albeit completely contradictory to who I am in Christ. These are the times where I preach the Word of God to myself so as not to completely ruin my testimony for the Christ whom I love and serve. Mamma-bear has, on occasion, gotten the better of me because I despise the injustice thrown at my kid.

The struggle is real and I have to combat it on a regular basis. When these people who are in positions to help my child do not and, furthermore, cause more harm, I battle with mamma-bear, with the inclination of my fleshly man to do what would otherwise come very natural to me. My personality is very aggressive, forthright, proactive and protective and, therefore, it would be nothing for me to blast someone (and I have). I purpose daily to walk according to the Spirit of the Living God versus my natural man. I have to daily find the balance between knowing when and what to speak to whom and just letting loose when the notion strikes.

I have definitely learned, throughout all of this that, in fact, I am fully capable of restraint, patience, and silence; that I can choose to be self-controlled, to be silent when necessary, and, when I speak up, I can do so without yelling or demeaning the person at which my words are directed.

I Corinthians 1:27: “but I discipline my body to make it my slave, so that, after I have preached to others, I myself will not be disqualified.”

One thought on “Encouragement for Parents with Chronically Ill Children

    RoseAnn Roth said:
    July 31, 2018 at 1:15

    This is so good. Again, it just proves that you are real and face the same problems as other parents. I applaud you.

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