Chapter Fifteen: Strength for the Weary
I’ve Fallen and I Can’t Get Up!
It is the enemy who tries to make you wallow in self-pity when you make a mistake. He wants you permanently derailed. God says that, if you get off track, get back on. If you sin, repent and stop sinning. If it was an honest mistake, repent and correct it. If it was blatant rebellion, do the same. God is not going to remove His Spirit from you because you missed a step unless you will not relent. So many find themselves in a frightful state thinking God will leave them abandoned. That too is a lie. His promise to the believer is, “I will never leave you nor forsake you.” When doubt tries to enter, take the authority over your own mind and pull down those imaginations and strongholds which try to take you captive. Quote the Word to yourself; it will not return to Him void.
In chapter 5, verse 7 of Nehemiah, when Nehemiah set out to rebuild the city wall, he “consulted with himself”. David encouraged himself in the wilderness. At your weakest, most vulnerable condition, if you have no one to encourage you and remind you of the promises of God, remind yourself. Pick up the Word and start quoting Scripture until you believe it again or for the first time. Allow God’s Spirit and truth to comfort and encourage you in weakness no matter in what form it presents.
There is a Holy Bible full of examples of God’s anointed missing the mark a time or two. Adam missed it. So did David, Moses, Noah, Abraham, Elijah, all the disciples, and many more in between. Get up and dust yourself off! Bind away a spirit of fear, doubt, depression, unworthiness, and anything else not of Holy Spirit and move on with God. Take up the authority Jesus Christ gave you at the cross and command all evil spirits to leave. Take up the mind of Christ. Take up the armor of God and press forward. You have a Kingdom destiny which only you are called to fulfill. Don’t let weak flesh have a foothold. Abdicate the flesh and all soulish emotions that quench Holy Spirit. A tragic weakness is in not knowing the power God has given you, or worse, refusing to use it.
“Only be strong and very courageous; be careful to do according to all the law which Moses My servant commanded you; do not turn from it to the right or to the left, so that you may have success wherever you go. This book of the law shall not depart from your mouth, but you shall meditate on it day and night, so that you may be careful to do according to all that is written in it; for then you will make your way prosperous, and then you will have success. Have I not commanded you? Be strong and courageous! Do not tremble or be dismayed, for the Lord your God is with you wherever you go (Joshua 1:7-9, NAS).”
“For God has not given us a spirit of timidity (fear), but of power, love and a sound mind (self-discipline) (II Timothy 1:7, NAS).”
In my 50 years of life, jealousy has never been something to which I have commonly subscribed. I’m always elated to witness success and assist others so as to catapult them into greatness. That being said, having a chronically ill child has, on more than one occasion, provoked a spirit of jealousy within me. I deal with it in the throne room of grace, to be sure, as soon as I feel it. Nevertheless, the pangs of such a vile emotion rear their ugly head when I least expect it. When I see all around me the kids of friends, family, acquaintances and even strangers who are perfectly healthy and thriving, as awful to admit as it is, I feel the sensation of jealousy. It is not for money or possessions, but for good health for my daughter. I weep for my sweet Sophia as I know others weep for their suffering children.
From family to family, it’s a sliding scale of illnesses and severity but, I assure you, pain is pain. I don’t have less sorrow for my child than a parent of a child with cancer or more sorrow than a parent with a kid with an infection which is taking longer to subside than average. Hands down, it is all horrible watching your child suffer while other children run, play, go to school and do the things healthy kids do. Sophia has begun a two month regimen of medication specifically for her issues. It’s been two weeks and we’ve seen some improvement. She’s been getting caught up in some school work and able to spend time with friends here and there. It has been encouraging to watch as slow progress is still progress.
Yesterday, just as Michael and I had embarked on a much needed date night, we had just sat down at the restaurant to order and the phone rings. Sophia called bawling her eyes out because, while at her friend’s house, she threw up repeatedly and was in a lot of stomach pain. What’s more, she was/is very frustrated she can’t seem to kick this and the correlating problems. This morning at church, a friend was excited to revel in our mutual friend’s daughter’s achievements where she had deservedly, once again, taken 1st place. Of course, I am thrilled for my friend’s daughter; in fact, she’s my best friend. Our daughters are only a year apart and we are each other’s daughter’s god-mothers.
I thought to myself how astonishingly disgusting it was that I would feel such pain and jealousy for one I love so dearly; its a bit of a paradox. Even as I type, I weep at the unbearable thought that I would have such emotions. It was all I could do not to cry the entire service knowing my baby was hurting and feeling the way I did. Notwithstanding, the fact remains, people in my shoes do feel surges of jealousy with the desire for our kids to be able to enjoy childhood/teenhood just like everyone else’s kids.
Just the other day, a friend wrote asking me to pray for peace for her because she was feeling jealousy for reasons I just described. She is a follower of Christ and knows God has a perfect plan for her child, yet struggles with such feelings. She mentioned that watching photo after photo of other kids doing so well and having such joy brought her more pain.
I responded like this (roughly): “My personal peace comes from reminding myself that, at the conclusion of this part of Sophia’s life, it will catapult her right into the perfect will of God. If I may be frank, you do not need prayer for peace, you need to believe God has a plan and that it is good; belief is where the peace lies. I don’t know what God has designed for your daughter’s life, but a part of that is not you feeling devastated as if there’s no hope. I say this to you as I must daily remind myself.” Knowing, believing, trusting and accepting God does have a plan is the key. This knowledge is how I am able to:
- Call myself to accountability in my incorrect emotions
- Pull down (away from) my mind all thoughts not of God
- Pull those thoughts into the obedience of Christ until my obedience is made complete
- Refuse to allow my mind to continue a process of comparing Sophia’s life to anyone else’s
- Remind myself God is faithful, He has a plan, He is in love with her and He purposes the best for her
- Believe all things work together for good for those who love God, for those who walk according to the Spirit
- Trust God with all my heart, soul, mind and strength – regardless of what my eyes see or emotions feel
- Reestablish peace that passes all understanding
If I may help you in any way, please reach out to me on Facebook, email or in the comments section. If there’s help for me and my child, there’s equal hope, help and peace for you. Jealousy of others will only lead to further destruction, chaos and confusion, it is a murdering spirit. Just because we feel something in a moment of weakness does not mean we have to allow it to overtake us. Focusing on the love of God chases out feelings which are not of God. Blessings!
Proverbs 14:30: “A heart at peace gives life to the body, but envy rots the bones.”
It’s been 7 ½ weeks since I last wrote because Sophia has been very ill. Shortly after the April 4th blog, she was admitted into the hospital 6 days; it is 2 hours away making the struggle a bit more intense. Test after test, lots of pain for Sophia and many trips back and forth to her specialists (also 2 hours away), they ruled out leukemia and Crohn’s disease, to which I am eternally grateful. Notwithstanding, we’re awaiting other tests to figure out, not only what it isn’t, but what it is. We go to her endocrinologist next week to explore other issues.
In the midst of it all, I must admit, I became wearier than ever before, spirit, mind and body. So much so that, on one occasion when my dad called and said “There are a lot of people praying for her”, the thought crossed through my mind, “for whatever good that’ll do”. I was shocked that even entered my mind, truly. I am a person of faith, nay, great faith. Christ is my life through and through and I make no bones about it. Regardless, that vile thought of faithlessness flitted right in and right back out. At that moment, I realized just how out of spiritual sync I had become. There are times in this life which, left unattended, have the power to utterly crush us. Watching your child in pain 24/7 years on end is one of those times. However, when I heard those words in my own mind, it called me to take notice of my spiritual condition.
Upon further investigation, I found I had been excessively agitated, frustrated and altogether ill at ease all the while begging God, pleading to Him to heal my child. At that moment, I became aware of the ponderance of the situation. I am well aware that, when someone is begging God for anything, they have either lost sight of the nature of God or they never grasped it at all. I was the former. It was then I positioned myself to repent, recalibrate my relationship with Christ and move forward in power and confidence in His purpose.
Our God, the Great I AM, is loving, kind, longsuffering, forgiving and merciful, among many other astounding characteristics. As His child, His bride, His ambassador, I know without question I never have to beg. I am to function in obedience which lends itself to His authority so as to utilize His power in any situation. If when I am not seeing things alter immediately while spiritually sound, I can rest in His ultimate plan. Before the foundation of the Earth, God devised a perfect plan for my life, Sophia’s life, and the life of every human ever to enter the Earth. I trust that plan. I believe in the greater heavenly good no matter how things feel or appear in the moment.
Proverbs 3:5-6: Trust in the Lord with all your heart and do not lean on your own understanding. In all your ways acknowledge Him, and He will make your paths straight.
II Corinthians 5:7: We walk by faith, not by sight…
Romans 5:3-5: Not only so, but we also glory in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope. And hope does not put us to shame, because God’s love has been poured out into our hearts through the Holy Spirit, who has been given to us.
I’m baffled it’s already been three weeks since last I blogged, but that’s how it goes when you have a child who is perpetually dealing with various illnesses. I’m writing today just to share my heart. I think, no, I know there is a misconception floating around that those who are followers of Christ are never down, never upset, bothered, or affected by their surroundings. As a Christian author and minister, I teach with voracity how to overcome the obstacles of life and I purpose to live that which I preach to others.
Notwithstanding, people of the deepest levels of faith have bad days. Just because we function in absolute trust in the Lord does not mean we’re bubbly and overflowing with positivity like we live in a bubble. The bottom line is, there are days I cry or rather, days I want to cry but literally have no opportunity to do so. There are days when I am just shy of being overwhelmed by the situation. Case in point, Sophia has been throwing up 11 or 12 weeks to date. In that time, I’ve attended multiple meetings with the school, an attorney, doctors, and the superintendent in the attempt to fight the school system so as to keep them from calling truancy (which was successful), dealing with losing our insurance due to Michael having lost his job of 20 years the end of December, attempt to pay bills with money we do not possess because his new job won’t render any real money until May, run back and forth to MUSC (2 hours away) for multiple doc appointments, run a household as well as minister to others.
With all that, I have zero time with my husband – ZERO. Frankly, I miss him. He’s working long hours so as to build a sales clientele and, by the time he comes home, we try to spend time together as a family and then everyone passes out. We have lost all our saving paying for doctors and medication along with the loss of his job. In our nearly 16 years of marriage, we have had 1 vacation and that was a trip to the beach with two two-year-olds…not what I would call a vacation as that is a lot of work! Life is hard enough with a normal setting with healthy kids, but life with a chronically ill child – I have no words. I cannot properly express the exhaustion, sorrow, and altogether madness of dealing with the day to day. No one could possibly understand other than someone in these shoes.
Here is the “so what?” No, we are not to remain in a funk or depression as that is not of God. We are not to spread our sorrows to any listening ear. Yes, we are allowed days where we can admit to the difficulties. Confess there is a present struggle to someone you can trust who won’t be judgmental and will lend godly counsel as needed. Sometimes we simply need a friendly ear and prayer.
God is faithful. God is good and great and kind and merciful. Above all, God is loving. Knowing this, I am sustained. Knowing this, I am at peace. Knowing this, I can push through the worst of days. Knowing this, I maintain the Living Hope, which is Jesus Christ. Knowing this, I can allow myself a moment to cry or even a moment to be frustrated without beating myself with guilt for having a bad moment. The best of people can have the worst of days. Cut yourself some slack and then allow the hand of God to raise you in spirit, soul, body and mind. He is faithful.
I Peter 1:3-4: Blessed be the God and Father of our Lord Jesus Christ, who according to His great mercy has caused us to be born again to a living hope through the resurrection of Jesus Christ from the dead, to obtain an inheritance which is imperishable and undefiled and will not fade away, reserved in heaven for you.
Caring for a chronically ill child requires dealing with the school system. I must say that, after six years of Sophia being on homebound, it is still very tricky to handle the school without unleashing a merciless verbal assault on someone; this would come easily to my natural man. It isn’t just the home office but each and every teacher as they are all different people with varying personalities and modes of operation. This year, Sophia’s freshman year, has been the worst dealing with the homebound committee. I have battled against a homebound assigned nurse giving false information leading to the rejection of homebound tutoring as well as false information making things appear one way when they were altogether another. I have had to battle all school year just to attain the proper accommodations for Sophia so as to be able to accomplish her work while in and out of school.
As recently as last week, I had to make a call to both the superintendent as well as a friend on the school board. The homebound board was refusing to grant Sophia homebound hours when she was out three straight weeks. They cited that, because her days were previously excused, they would not accept the newly submitted backdated homebound form so as to get the necessary tutoring to cover those three weeks. When I finally received a call from the head of homebound after she must have received a call from a superior, her response was, “Oh, so all you need are the homebound services? We thought you were requesting her days to be doctor’s excused and they already were.” This was a lie as she knew exactly what I was requesting. Honestly, I cannot for the life of me understand why the school system uses the motto “no child left behind” when they’ve proven time and again they couldn’t care less about my child or her education. There are times over the last 6 years where I have lost my temper in utter frustration listening to them flim-flam their way through the litany of excuses as to why they cannot provide this or that. They love looking good on the surface but, underneath, in my opinion, it’s all about reputation and money.
I say this to say that walking with God and having to confront the school system is challenging at best. As if it isn’t enough having to wrangle with the doctors and their ever changing assessments of what’s going on any given occasion and having to care for my sick child knowing that, in the moment, I can’t do anything to ease her suffering, insult is added to injury having to deal with the school threats of calling truancy if I don’t immediately comply to their system.
I find myself having to regularly and specifically apply God’s Word to my life, my attitude and my overall posture when dealing with the school system at large. I perpetually call myself to accountability so as to not lose my tempter with someone merely delivering a message. I must remind myself they are people too; that the individuals with whom I am dealing are just that – individuals – they are not the system itself. I long to be perfect as Christ is perfect, but there are moments when I lose sight of Holy Spirit, if even for a moment, and have to force myself into obedience to Christ. I surrender each instance to God so I do not become what I hate – a fleshly, worldly, loudmouth mom going off on a tangent. As tempting as it is and as easily as that would come to my natural man, I must resist.
These are some of the lessons within the lessons drawing me closer unto the bosom of God. Choosing to resist temptation at all costs is vital. Though I fail from time to time, God is faithful. I remind myself all things DO work together for good for those who love God and I am in love with God.
James 1:13-16: When tempted, no one should say, “God is tempting me.” For God cannot be tempted by evil, nor does He tempt anyone; but each person is tempted when they are dragged away by their own evil desire and enticed. Then, after desire has conceived, it gives birth to sin; and sin, when it is full-grown, gives birth to death. Don’t be deceived, my dear bothers and sisters.
“Why me, Lord?” or rather “Why my child?” The question of “why” has to be the most commonly asked question of anyone throughout the ages. “Surely God who is loving has forgotten us. Doesn’t He love us? Is He punishing us? Is He lacking in power, goodness or greatness? Surely a good God would not allow this. If He were great, we wouldn’t suffer so.” To be clear, God is equally loving, good and great. He is all powerful and able to heal in any capacity needed; in fact, His healing is fully intact and is complete in the spirit-realm. The problem lies not in who God is, but in how we perceive Him and our circumstances.
We read in the first few lines of the 73rd Psalm of Asaph, “Surely God is good to Israel, to those who are pure in heart. But as for me, my feet had almost slipped; I had nearly lost my foothold. For I envied the arrogant when I saw the prosperity of the wicked.” He continues citing how the wicked prosper and the righteous suffer. Here we witness the candor of a man who was in love with God. He begins with stating the truth about God, that He loves His people, then goes into the confession of his envy of the wicked who prosper. Envy, as shown in numerous verses of God’s Word, is sin. Not only is it sin, but it is mercilessly destructive.
I deeply appreciate Asaph’s confession of his envy of those who flourish yet are wicked. When one has set their cap to serving the Lord yet suffers greatly, it is all too easy to become prideful assuming God should be more mindful of the righteous; this is pride. In our prideful spirit, we believe God has wronged us, forgotten us or altogether forsaken us. This simply is not true. There are a multitude of Scriptures preparing God’s people in how to stand in the evil day, how we have overcome the world yet beset by a myriad of sufferings.
We’re back to the problem: is it God or is it man’s prideful thinking? Without question, it is the latter. When we lay down our fleshly mindset (conscious or unconscious) of “I deserve better because I love the Lord,” already we can deduce we do not love God as much as we think. In fact, we think too highly of ourselves and love ourselves in an unhealthy fashion. It isn’t until we get to know our Sovereign King that we can take hold of a major paradigm shift. The bottom line is, we are all unworthy of God’s grace, yet He extends it regardless. All of humankind deserves hell, yet, in His supreme compassion, He allows us to partake in His worth, His Kingdom, His grace and kindness.
When our children suffer, it is far worse than suffering in our own bodies. Nevertheless, God is sovereign; He is just in all His ways. I believe 100% in supernatural healing, binding away spirits and releasing Holy Spirit in their place, anointing with oil, laying on hands from elders, repenting of known sin and going to sin no more, and breaking generational or other curses. When, however, one who walks with the Lord has done all this through faith and they don’t immediately experience a shift in the situation, we must stand in faith and trust that the Lord is all He proclaimed. His promises remain steadfast and sure.
II Corinthians 1:3-4 states, “Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.” Instead of asking, “Why”, we need to begin to humble ourselves and turn the “why” into praise. Let us come to the Father on behalf of our children so as to praise God in faith that He is who He says He is as well as stand in the faith we proclaim. Additionally, stop thinking only of your situation and begin to ask, “Lord, in all this suffering, how may I aid and comfort another in theirs.”
Asaph closed his psalm with the words, “When my heart was embittered and I was pierced within, then I was senseless and ignorant; I was like a beast before You. Nevertheless I am continually with You; You have taken hold of my right hand. With Your counsel You will guide me, and afterward receive me to glory. Whom have I in Heaven but You? And besides You, I desire nothing on Earth. My flesh and my heart may fail, but God is the strength of my heart and my portion forever. For, behold, those who are far from You will perish; You have destroyed all those who are unfaithful to You. But as for me, the nearness of God is my good; I have made the Lord God my refuge, that I may tell of all Your works.”
As parents, let us release the bitterness and embrace the God we say we love. Though our feet nearly slipped, allow God to rescue so that our feet are once again planted on solid ground. It isn’t enough to entrust our lives to the Lord, but we must equally, or more so, trust Him with our children.
I Peter 5:10: And the God of all grace, who called you to His eternal glory in Christ, after you have suffered a little while, will Himself restore you and make you strong, firm, and steadfast.
Having a chronically ill child has killed my OCD; there’s literally not enough energy remaining in my body to lend to cleaning my house and ordering things as I am accustomed. Maybe “killed” is overstating a bit. It’s more like a deep suppression, which is worse. If the OCD were dead, it wouldn’t bother me how dirty my house gets! Nevertheless, the point is, I am no longer able to lend attention to detailing my house in a way that meets my approval. I’m severely embarrassed when someone stops by because of the common disarray.
As I’ve previously stated, it is exhausting caring for a chronically ill child, or any person for that matter. The medial tasks one could accomplish prior to their child becoming ill can no longer be done lest you pay an outside source. I’d give just about anything to have the money to hire a cleaning person twice a week. But, when all your money goes into the care of the child, there’s nothing much left, at least for the average family.
Here’s my point. To the parents with OCD who expect certain things of themselves to be executed a particular way at a certain time, allow yourself to let it go. There are, as a matter of fact, more important challenges to daily life than having a spotless house. Would I be more comfortable with a tidy house? Without question! Notwithstanding, I am no longer able to accomplish it. I’ve had to learn to rest regardless of the mess surrounding me. It doesn’t mean I never clean. It does, however, mean I don’t go into a dither when it isn’t done when I believe it should be. I have had to adapt to the circumstances because I surely haven’t discovered how to force life to adapt to my OCD.
Life is hard enough with an ill child, regardless of their malady. We need not heap further pressures to our schedules, especially when they have no real value. Your life and the life of your entire family superiorly outweigh the irritations of an untidy house. For me, learning to lay down the internal pressure of OCD was difficult, but altogether necessary. Rest is hard to come by with a sick child, so I choose to use my “down time” to rest instead of clean. It is of the utmost importance to be as rested as possible so as to not become unable to care for your child and other family members. Learning to let things go has been a huge step in my mental wellness. It really is okay to rest. Let’s not add heaviness to the yoke of life. I encourage you to lay down the stress.
Mark 6:31: He (Jesus) said…“Come to me by yourselves to a quiet place and get some rest.”