illness

Encouragement for Parents with Chronically Ill Children

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In my 50 years of life, jealousy has never been something to which I have commonly subscribed. I’m always elated to witness success and assist others so as to catapult them into greatness. That being said, having a chronically ill child has, on more than one occasion, provoked a spirit of jealousy within me. I deal with it in the throne room of grace, to be sure, as soon as I feel it. Nevertheless, the pangs of such a vile emotion rear their ugly head when I least expect it. When I see all around me the kids of friends, family, acquaintances and even strangers who are perfectly healthy and thriving, as awful to admit as it is, I feel the sensation of jealousy. It is not for money or possessions, but for good health for my daughter. I weep for my sweet Sophia as I know others weep for their suffering children.

From family to family, it’s a sliding scale of illnesses and severity but, I assure you, pain is pain. I don’t have less sorrow for my child than a parent of a child with cancer or more sorrow than a parent with a kid with an infection which is taking longer to subside than average. Hands down, it is all horrible watching your child suffer while other children run, play, go to school and do the things healthy kids do. Sophia has begun a two month regimen of medication specifically for her issues. It’s been two weeks and we’ve seen some improvement. She’s been getting caught up in some school work and able to spend time with friends here and there. It has been encouraging to watch as slow progress is still progress.

Yesterday, just as Michael and I had embarked on a much needed date night, we had just sat down at the restaurant to order and the phone rings. Sophia called bawling her eyes out because, while at her friend’s house, she threw up repeatedly and was in a lot of stomach pain. What’s more, she was/is very frustrated she can’t seem to kick this and the correlating problems. This morning at church, a friend was excited to revel in our mutual friend’s daughter’s achievements where she had deservedly, once again, taken 1st place. Of course, I am thrilled for my friend’s daughter; in fact, she’s my best friend. Our daughters are only a year apart and we are each other’s daughter’s god-mothers.

I thought to myself how astonishingly disgusting it was that I would feel such pain and jealousy for one I love so dearly; its a bit of a paradox. Even as I type, I weep at the unbearable thought that I would have such emotions. It was all I could do not to cry the entire service knowing my baby was hurting and feeling the way I did. Notwithstanding, the fact remains, people in my shoes do feel surges of jealousy with the desire for our kids to be able to enjoy childhood/teenhood just like everyone else’s kids.

Just the other day, a friend wrote asking me to pray for peace for her because she was feeling jealousy for reasons I just described. She is a follower of Christ and knows God has a perfect plan for her child, yet struggles with such feelings. She mentioned that watching photo after photo of other kids doing so well and having such joy brought her more pain.

I responded like this (roughly): “My personal peace comes from reminding myself that, at the conclusion of this part of Sophia’s life, it will catapult her right into the perfect will of God. If I may be frank, you do not need prayer for peace, you need to believe God has a plan and that it is good; belief is where the peace lies. I don’t know what God has designed for your daughter’s life, but a part of that is not you feeling devastated as if there’s no hope. I say this to you as I must daily remind myself.” Knowing, believing, trusting and accepting God does have a plan is the key. This knowledge is how I am able to:  

  1. Call myself to accountability in my incorrect emotions
  2. Pull down (away from) my mind all thoughts not of God
  3. Pull those thoughts into the obedience of Christ until my obedience is made complete
  4. Refuse to allow my mind to continue a process of comparing Sophia’s life to anyone else’s
  5. Remind myself God is faithful, He has a plan, He is in love with her and He purposes the best for her
  6. Believe all things work together for good for those who love God, for those who walk according to the Spirit
  7. Trust God with all my heart, soul, mind and strength – regardless of what my eyes see or emotions feel
  8. Reestablish peace that passes all understanding

If I may help you in any way, please reach out to me on Facebook, email or in the comments section. If there’s help for me and my child, there’s equal hope, help and peace for you. Jealousy of others will only lead to further destruction, chaos and confusion, it is a murdering spirit. Just because we feel something in a moment of weakness does not mean we have to allow it to overtake us. Focusing on the love of God chases out feelings which are not of God. Blessings!

Proverbs 14:30: “A heart at peace gives life to the body, but envy rots the bones.”

 

Encouragement for Parents with Chronically Ill Children

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“They (the righteous) will have no fear of bad news” reads Psalm 112:7. For anyone who walks with God who has a chronically ill child, this verse alone has the power to uplift the most downtrodden in the darkest of times. God’s promise to those who love Him and keep his commands is that the righteous will never be forsaken, they will never be shaken.

I speak as one who is, through Jesus’ blood, the righteous seed of Abraham. As such, I have no fear of bad news because I trust the One who upholds His word as well as our family. Over the last 9 years, especially the last 3, I have watched Sophia go up and come down thousands of times over. One by one, we hear a diagnosis for this and for that. Just last week they determined she has dysautonomia, a malfunction of the nervous system. Three times in a week she had to get IV fluids because her body can’t retain them. This is causing chronic dehydration, fevers and tachycardia. Our next step is to visit the neurologist and cardiologist.

I can say without hesitation, I have no fear of bad news because my confidence lies in the God of all creation. It does not mean I like what’s happening or that I am enjoying watching my daughter suffer. It does mean I believe beyond what I see. I trust all things work together for good for those who love God. My heart is secure in Jesus, the Christ. I will praise Him all the more until I see heavenly, divine results concerning Sophia. My encouragement is in personally knowing who God is; in such intimate knowledge, it overrides temporary discouragement.

 

“Surely the righteous will never be shaken; they will be remembered forever. They will have no fear of bad news; their hearts are steadfast, trusting in the Lord. Their hearts are secure, they will have no fear; in the end they will look in triumph on their foes. They have freely scattered their gifts to the poor, their righteousness endures forever; their horn will be lifted high in honor (Psalm 112:6-9).”

Encouragement for Parents with Chronically Ill Children

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II Corinthians 10:4-7: For the weapons of our warfare are not carnal but mighty in God for pulling down strongholds, casting down imaginations and every high thing that exalts itself against the knowledge of God, bringing every thought into captivity to the obedience of Christ, and being ready to punish all disobedience when your obedience is fulfilled. Do you look at things according to the outward appearance?

 

A major issue with having a chronically ill child is dealing with depression, theirs and ours. For the child, depression is very common and to be expected. After all, they lack the maturity to process their emotions; therefore, in their continuous illness, it can easily become overwhelming to the point of depression. Our role is to keep our children uplifted, both in prayer and in spirit. We must readily encourage them, not with falsehoods but with the hope of Christ and His promises to His righteous seed.

We cannot buckle underneath the pressure of the illness or the possible consequences of said illness. We must not allow fear, anxiety and/or intimidation to set in; anyone with a sick child can relate to what I’m saying. Properly handling your child’s depression will heavily rely on how you deal with it in yourself. First, we must understand that, when we are depressed, it means we have lost sight of our hope in Christ. That applies to me as much as anyone. When I begin to feel it knocking at my door, I must first recognize it for what it is: an enemy of God. Depression is a manifestation of one taking their eyes off God and placing them on themselves, their ability or inability, the situation, helplessness, or what have you.

Secondly, if you, the parent, do not properly assess and confront your depression, there is no way you can aid your child in their depression. Thirdly, one must turn to the Scriptures if you plan to eradicate depression with efficacy. The Word specifically instructs God’s people to “pull down (away from self) imaginations, strongholds, and every high thing that exalts itself above the name of Jesus.” In other words, we must take hold of any and every thought not of God in our minds, hearts and spirits so as to allow the hope of Christ to reign. Because Yahweh, before the foundation of the world, understood the weaknesses of mankind and our feeble faith and mindset, He scribed instructions as to how to proceed when such faithless, self-centered thoughts entered our minds.

Depression, in a nutshell, stems from godlessness; godless thought patterns, godless strongholds, godless imaginations and/or godless occurrences sent from Satan to lure us into darkness. This does not mean the person is not redeemed from hell, but rather their mind has been altered due to circumstances that have caused trauma and disillusionment. In this, it is our responsibility and our right as heirs to the Kingdom of God to take captive anything not of God, bring it into the obedience of Christ, willing to punish all disobedience until our obedience is complete. It is our duty to keep our minds sharp, clean and clear of the debris of life. When we do, we will be fully equipped to, not only encourage ourselves in Christ pulling ourselves out of depression, but our children and family as well. Keep your mind, spirit and heart stayed on Christ, not on the circumstance, trauma, sadness, depression, lack of finances, or anything other than God, His Kingdom, His greatness and His everlasting love for you and your child.

 

I Peter 5:6-11: Therefore humble yourselves under the mighty hand of God, that He may exalt you at the proper time, casting all your anxiety on Him, because He cares for you. Be of sober spirit, be on the alert. Your adversary, the devil, prowls around like a roaring lion, seeking someone to devour. But resist him, firm in your faith, knowing that the same experiences of suffering are being accomplished by your brethren who are in the world. After you have suffered for a little while, the God of all grace, who called you to His eternal glory in Christ, will Himself perfect, confirm, strengthen and establish you. To Him be dominion forever and ever. Amen.

 

Facebook Group: Encouraging Parents with Chronically Ill Children

https://www.facebook.com/groups/134641753855494/

 

Encouraging Parents with Chronically Ill Children

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My name is Alexys V. Wolf. I am first and foremost a wife and mother of two beautiful teenage daughters, as well as a minister, author and artist. I founded The Fiery Sword Ministries in 2007 and have multiple published books dealing with a garden variety of spiritual issues. The purpose of this blog and group, Encouragement for Parents with Chronically Ill Children, is to aid fellow parents in their journey with sick children.

By way of introduction, my eldest daughter, Sophia, started getting sick at six months old with double ear infections, yet they were nothing spectacular; nothing that would send red flags of future chronic illness. She was otherwise a well child until the age of five when she developed chronic stomach aches and UTI’s. We dealt with those nearly a year. When the gastroenterologist performed at endoscopy, he said he found no acid reflux but she had severe unexplained constipation. Unfortunately, the acid reflux went undiagnosed many years because she would only experience it with antibiotics.

By the age of 8, around 3rd grade, the stomach aches worsened and her pediatrician said, “It’s psychosomatic.” Knowing my daughter, watching her day in and day out, I was positive the doctor was incorrect in her sloppy assessment. By 9, I began taking her to our G.P. who was much more responsive to Sophia’s needs. Her neck had been growing oddly several years yet, when I would inquire, multiple doctors blew it off as “that’s just how she’s growing. Nothing to worry about.” Lo and behold, by the age of 10, our G.P. said, “Don’t freak out, Alexys, but Sophia has a goiter.” I rejoiced!! I knew something was remiss and she was the first person to acknowledge it. As one would expect, the ultrasound revealed Hoshimoto’s thyroiditis.

 That sent us on a crazy ride for which we are still sojourning. We went to several specialists locally, but we found better care out of town at MUSC (Medical University of South Carolina), a 2-3 hour drive depending on traffic. It so happens that they discovered additional autoimmune issues, hormonal issues, as well as stomach problems.

I have refrained from speaking publically because there are certain aspects one simply doesn’t want to share with the world. Of course, I do share some within the confines of my various books, but that isn’t a public forum like social media. Not everyone will read my books, but anyone anywhere can run across my blog. Notwithstanding, I knew it was time to speak so as to help those whom I am able with daily living with a sick child. It is definitely no picnic. Along with the physical sickness, a parent has to eventually deal with the mental, emotional and spiritual toll it takes on someone who should, by all accounts, be running, jumping and playing with their friends without a care in the world. They should be fretting over silly things such as completing homework, who likes who at school, discovering interest in the opposite sex, attending school and church and their respective functions; what clothes to wear to this or that social event.

But, to our chagrin, they concern themselves with getting in their daily meds and whether or not they’ll be able to feel well enough to get out of bed on any given day. As the parent, it’s so frustrating watching teen groups at church prepare to minister overseas or in another state and not one person in that group knows my kid’s name. The sick are most definitely the forgotten. As a parent, it is heartbreaking. Not only is your child sick, but you are blatantly aware of all they’re missing. The common joys of life elude them.

In the following months, I will be addressing many issues which waylay, not only the children, but the parents and how I deal with them on a spiritual, physical, mental and emotional level. My directive is not to have a support group, per se, but rather a group of people with common interests and goals so as to encourage and enlighten one another. Granted, my child is not dying of cancer or anything of the sort as she comes in and out of wellness; although, as of late, there’s more illness than wellness. I don’t pretend to have all the answers, but we can certainly rally together with the intention of being comforted as well as grow in faith, strength and encouragement.

As a minister, I am an avid believer of hope in the Lord Jesus Christ as well as the power of supernatural healing; I have both witnessed it and experienced it for myself. In fact, Sophia, like my previous 7 pregnancies, was dead in my womb until, one day, two men of God were sent our way. They prayed powerfully in way I was yet to learn. In that prayer, God later revealed that, in fact, Sophia was dead but He sent these men to speak life into Sophia’s otherwise dead little body. That being said, I also know there are times where we don’t see what we think we ought to given the power of Christ within us. It’s in those times when an explanation fails us that we need to come together seeking the Word and will of the Father who is faithful.

As for our household, we have covered every known area spiritually and physically. We have laid on hands with elders, anointed with oil, bound away evil spirits, released Holy Spirit upon her and our home, broken generational curses and applied the blood of Jesus, repented, praised and so on. We’ve changed our diet, gone to specialists and taken the proper steps. In all this, we wait upon the Lord, trust in His sovereignty, and take things one day at a time. We place our trust in the Living Hope of Jesus.

Psalm 27:11-14: Teach me Your way, O Lord, and lead me in a level path because of my foes. Do not deliver me over to the desire of my adversaries, for false witnesses have risen against me, and such as breathe out violence. I would have despaired unless I had believed that I would see the goodness of the Lord in the land of the living. Wait for the Lord; be strong and let your heart take courage; yes, wait for the Lord.