Having a chronically ill child has killed my OCD; there’s literally not enough energy remaining in my body to lend to cleaning my house and ordering things as I am accustomed. Maybe “killed” is overstating a bit. It’s more like a deep suppression, which is worse. If the OCD were dead, it wouldn’t bother me how dirty my house gets! Nevertheless, the point is, I am no longer able to lend attention to detailing my house in a way that meets my approval. I’m severely embarrassed when someone stops by because of the common disarray.
As I’ve previously stated, it is exhausting caring for a chronically ill child, or any person for that matter. The medial tasks one could accomplish prior to their child becoming ill can no longer be done lest you pay an outside source. I’d give just about anything to have the money to hire a cleaning person twice a week. But, when all your money goes into the care of the child, there’s nothing much left, at least for the average family.
Here’s my point. To the parents with OCD who expect certain things of themselves to be executed a particular way at a certain time, allow yourself to let it go. There are, as a matter of fact, more important challenges to daily life than having a spotless house. Would I be more comfortable with a tidy house? Without question! Notwithstanding, I am no longer able to accomplish it. I’ve had to learn to rest regardless of the mess surrounding me. It doesn’t mean I never clean. It does, however, mean I don’t go into a dither when it isn’t done when I believe it should be. I have had to adapt to the circumstances because I surely haven’t discovered how to force life to adapt to my OCD.
Life is hard enough with an ill child, regardless of their malady. We need not heap further pressures to our schedules, especially when they have no real value. Your life and the life of your entire family superiorly outweigh the irritations of an untidy house. For me, learning to lay down the internal pressure of OCD was difficult, but altogether necessary. Rest is hard to come by with a sick child, so I choose to use my “down time” to rest instead of clean. It is of the utmost importance to be as rested as possible so as to not become unable to care for your child and other family members. Learning to let things go has been a huge step in my mental wellness. It really is okay to rest. Let’s not add heaviness to the yoke of life. I encourage you to lay down the stress.
Mark 6:31: He (Jesus) said…“Come to me by yourselves to a quiet place and get some rest.”
Chapter 5b: Abdicating the Throne of Flesh
“For we are the true circumcision, who worship in the Spirit of God and glory in Christ Jesus and put no confidence in the flesh…(Philippians 3:3, NAS).”
“Among them we too all formerly lived in the lusts of our flesh, indulging the desires of the flesh and of the mind, and were by nature children of wrath, even as the rest (Ephesians 2:3, NAS).”
Definition of Circumcision: removal of the foreskin or prepuce of the male genital organ
In the natural, circumcision is a customary, religious practice of being set apart from other people groups by removing a layer of skin not required for life. It is removed as a symbol of purity. One is born with it but is not necessary to sustain life, much like the appendix or gallbladder. Spiritually, God calls His people to be “set aside” through circumcision. We’re all born with a fleshly, sinful nature, but it must be cut away so as to be set aside unto God. It has everything to do with characteristics and predispositions with which we are all born. To say, “I was born this way” as if to excuse sin or bad behavior is invalid before God. We’re all born with characteristics, flaws and temptations that, once in Christ, must be abdicated to God through spiritual circumcision. For that matter, we’re all born little babies, but we do not remain in such a form.
To be circumcised in Christ means you live only unto Christ and you willingly cut away that which is displeasing to the King. It is a matter of surrendering everything. “Put no confidence in the flesh” Paul says, by definition, the flesh is defiled. The fleshly nature of mankind is a heavy yoke no one can bear very long. It is condemned and can breed only corruption, no exemptions. There is no exclusive club comprised of people who are born into righteousness. We are all born into the nature of the world with our minds corrupt from birth. There are natural weaknesses that don’t need to be kept and controlled; they need to be forfeited altogether for the cause of Christ.
A baby or young child may be innocent from blatant sin, but a child naturally knows how to manipulate with crying, whining, begging, nagging and things of the like. It comes naturally figuring out quickly how to get what it wants. That isn’t innocence, that’s the sin nature at work without even realizing what’s happening.
It is crucial you and I understand we are all born into the sin nature of Adam. There is no good person good enough that God would look upon them and say, “Okay, you, you and you are exempt from resigning the Adamic nature because I like your style!” Jesus said, “Why do you call me good? There is no one good but God (Matthew 19:16; Romans 7:18).” True circumcision is spiritual and it is a matter of cutting away that which divides you from intimacy with God.
All God’s people should desire and pray that “the natural will become unnatural and the supernatural of God become natural.” Translation: you personally should be so attuned to and led by Holy Spirit that acting worldly becomes unnatural, and operating supernaturally, as God, becomes everyday life. In this condition, whatever unholy characteristics are present with which we are born, they are brought into submission to the Holy One so that He will reign in their stead.
One of many issues with having a chronically ill child is dealing with the emotional and psychological toll. As a parent, when your child is sick for an extended period of time, for many people, there’s no escape because you are with them 24/7. You’re administering medications, taking them to the next doctor’s appointment or simply holding and comforting him or her hours at a time. To say it is “draining” and “overwhelming” is a gross understatement.
I can only speak from my perspective as I have not journeyed with any other parent and their sick child. I’m certain it is different in each situation but, at the root, we’re all exhausted which makes us the same. Since I don’t have a mountain cabin, a beach house or even a separate office at my disposal to which I can get away and I don’t have the means to hire a nursing staff to care for Sophia, I have to go in my room, shut the door and simply sit in quietude, just me and God. There I am able to regain my sanity once more as I talk to mine and Sophia’s Creator.
Being a caregiver of anyone is difficult in its own right, but caring for your baby of any age is quite another thing. Life can become so overwhelming you don’t know which way to turn. Graham Cooke said this and they are life-changing words by which I choose to live: “We are not here to be overwhelmed by life, by circumstances, by the wickedness of people, or by what the enemy is trying to accomplish. We are here to be overwhelmed by who God is for us.”
As I continue on this path with my God-created daughter, daily I remind myself that God is in love with her and with me. In this remembrance, I rest is who God is in every situation. I am at peace knowing Christ carried this specific burden at the Cross of Calvary. His Kingdom has equipped me with everything I need in each and every moment. When I begin to feel overwhelmed by the circumstances before us, I breath; I commune with the sovereign, holy God, and I choose rest instead of allowing chaos to ensue.
The tactic of Satan is to get us to panic because, when we do, we lose sight of God and His purpose. I am sustained even when I do not know what to do in a given moment. God is faithful, He is just, He is loving and He has a plan; I have walked with Him long enough to experience this fact. According to Romans 8:28, all things (good, bad, uncomfortable, painful, etc.) work together for good to those who love God, to those who are called according to His purpose. I bank on this promise every single day. He will not let us down despite how bleak things can appear. I rest in His greatness.
Psalm 27:13-14: I would have despaired unless I had believed that I would see the goodness of the Lord in the land of the living. Wait for the Lord; be strong and let your heart take courage; yes, wait for the Lord.
Chapter Three: Gaining a New Perspective, part I
“The Lord opens the eyes of the blind; the Lord raises up those who are bowed down; the Lord loves the righteous (Psalm 146:8, NAS).”
“The Spirit of the Lord is upon me, because He anointed Me to preach the gospel to the poor. He has sent Me to proclaim release to the captives, and recovery of sight to the blind, to set free those who are oppressed (Luke 4:18, NAS).”
Definition of Perspective: a particular attitude toward or way of regarding something; a point of view.
Definition of Surrender: cease resistance to an enemy or opponent and submit to their authority. Synonyms: forsake, deny, stand down, resign, disclaim, relinquish, forgo, cede, abandon, concede, yield, submit, relent, renounce, abdicate, transfer
Graham Cooke said, “Obstacles are a part of life. There is often no way to avoid them. However, there is a way to change our perspective so they can be used to our advantage.” Everything we do hinges on our perspective of what’s happening to us, for us, against us and around us. It is common knowledge that, with every action, there is a reaction. How we respond to things around us is always based on what we perceive is happening, be it good or bad.
For example, when my first husband left me with a note on the coffee table, I perceived it as the worst thing that could possibly happen to me. I was raised that Christians do not divorce, no matter what. Even though he had cheated, lied, mocked, neglected, shunned, and altogether broke our covenant vows in every conceivable way, I deemed his departure as a negative. I cried, and cried and cried and cried some more. I begged him to come home and be the man he was supposed to be. I willingly forgave him and was willing to put it all behind us.
When he did not comply, I began tail-spinning into a dark, sad, lonely, angry, desperate place for the better part of seven years, to which I refer as my “seven years of rebellion”. I slept with men not my husband, cussed like a sailor, I spoke harsh words to a long-time friend, and couldn’t stop pretending I was fine. Because I couldn’t see the grace of God causing him to leave, I couldn’t properly respond. My eyes were blinded and I blamed everyone except the culprit: me.
Yes, he did horrible, despicable things but, had I initially sought the face of God, I wouldn’t have married him. Looking back, the signs were evident. I simply refused to acknowledge them. If I could have perceived God’s voice prior to marriage, the marriage would not have happened; hence I would not have experienced undue pain and suffering. It is only when we seek God’s vision in each situation of life that we are able to see as He sees so as to respond according to the Spirit instead of according to the flesh.
Once I returned to and resigned my whole life to Christ in 2000, I began a new, fresh journey with Christ as I had never known or experienced. I began to see that, even though I had made a huge mess of my life due to poor decisions, God’s promise to “turn all things for good for those who love Him” was for me personally. Instead of trying in my own strength to “pick up the pieces,” I was fully able to leave all the pieces behind me and allow Christ to make a whole new me. The old pieces were not required and certainly me having to “pick up” anything of the old was not necessary.
Understanding this, my decisions, little by little, began to morph into something new, something altogether other-worldly. My discernment sharpened and continues to do so today. Every time I need to make a decision and I don’t readily know what to do, I rest in Christ and wait. I allow Him to show me what to do when the time comes.
In the worst circumstances, in the weakest places of life, before you do anything, ask God to grant you His vision, His perspective, and His will so as to go forward in His strength. A changed perspective will change the course of your life because it will change how you respond to everything. When you surrender your fleshly, natural, limited vision to the Holy One, you’ll be amazed at how darkness will be turned to light!
When All My Strength Has Failed
Alexys V. Wolf