struggle

Encouragement for Parents with Chronically Ill Children

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I must be transparent. The “mamma bear” Alexys and the “minister” Alexys are often in conflict. As a minister, I purpose to live a life of balance, love, patience, kindness, holiness and to be at peace with everyone, at least as far as it is up to me. Adversely, as a mother of a chronically ill child, I often feel the urge to, at the very least, tell someone off. Or, at the worst, punch someone squarely between the eyes for their neglect, bullying or disregard for my child who only wants to be well and accepted by her peers.

For example (in no particular order):

 

  • Dealing with doctors who pass her around from this one to that one or one questions another’s diagnosis or treatment and look at me as though I’ve done something wrong.
  • When kids her age at school or elsewhere tease and/or bully her because they don’t understand her situation, why she likes colored hair, why she’s so shut down, or why she doesn’t fit the acceptable body image.
  • When the youth pastor at our church refuses, though begged repeatedly over a year, to reach out to her or have girls her age reach out to her. He visited her once, had a couple girls text her a few times and, just like that, she was quickly discarded and forgotten like yesterday’s news.
  • Dealing with the school powers-that-be who threaten to call truancy because they question the word of doctors as though she isn’t really too sick to attend; who demand meeting after futile meeting.

 

In the aforementioned scenarios, yes, I definitely want to scream at and hit someone albeit completely contradictory to who I am in Christ. These are the times where I preach the Word of God to myself so as not to completely ruin my testimony for the Christ whom I love and serve. Mamma-bear has, on occasion, gotten the better of me because I despise the injustice thrown at my kid.

The struggle is real and I have to combat it on a regular basis. When these people who are in positions to help my child do not and, furthermore, cause more harm, I battle with mamma-bear, with the inclination of my fleshly man to do what would otherwise come very natural to me. My personality is very aggressive, forthright, proactive and protective and, therefore, it would be nothing for me to blast someone (and I have). I purpose daily to walk according to the Spirit of the Living God versus my natural man. I have to daily find the balance between knowing when and what to speak to whom and just letting loose when the notion strikes.

I have definitely learned, throughout all of this that, in fact, I am fully capable of restraint, patience, and silence; that I can choose to be self-controlled, to be silent when necessary, and, when I speak up, I can do so without yelling or demeaning the person at which my words are directed.

I Corinthians 1:27: “but I discipline my body to make it my slave, so that, after I have preached to others, I myself will not be disqualified.”

When All My Strength Has Failed

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Chapter 8, The Real Fight, part I

One of the greatest lessons I learned upon my return to Christ February 2000 was that my fight is not against flesh and blood, but against powers and principalities and the evil in heavenly places. Wow, what a revelation for me! I no longer had to fight for what’s mine, no longer did I need to justify myself (past, present or future); no longer did I need to beg people to realize the life-altering transformation that was happening to me. There was no longer a need to defend my honor because the only honor worth defending was that of Jesus, the Christ. The only way to defend His name was to live righteously, holy, humbly, and with utter denial of self.

I now know that, if I have an enemy, it is not the person but the evil behind their actions. Knowing this basic truth of where my enemy actually lies (in the spirit-realm), I can rest knowing Christ is the only proper weapon of mass destruction. No more do I need to hate anyone, be bitter against an oppressor, be angry and vindictive against someone who has broken my heart, and so on. In fact, by identifying the real enemy, I have the utmost mercy for the offender. I can easily pray for those who curse me, bless those who hate me, and give to those who steal from me. No more do I weary myself over those whom I love that are walking in bondage in some form or fashion.

Once it really hit me and buried itself in my spirit that it is absolutely no longer I who live but Christ who lives in me, it changed the entire paradigm of my existence and how I view everything, good and bad. All too often God’s people battle fellow man, for whatever myriad of reasons, and in the process they weaken themselves in all the wrong ways. They stress and strive in their natural man to convince people they need to repent when, unknowingly, they turn people away from that very Christ because of their level of stress, anxiety, nagging, control and manipulation. Love changes people. Rest and peace in the midst of any chaos is proof positive of Christ’s reality.

Fighting one another, constantly in battle with friends, family, co-workers, enemies, or whomever, is not the path to freedom – for you or for them. As we will discuss later, the work of God is complete through Jesus. Since Jesus’ completion of defeating Satan and death, we have no fight, only to surrender to the One who is already victorious. At the risk of oversimplifying, this is the honest truth. I’ve learned (and continue to learn) how to daily surrender people and situations. In so doing, I have rest even when I don’t like what I see or feel. I battle, but only through releasing the blood of Jesus in each and every climate I encounter.

For example, if I’m praying for an addict, I pray this way: “Father, in the name of Jesus, I stand in the gap for __________. I pray for Your blood to cover __________ from the top of his or her head to the soles of his or her feet. By Your power, I thank You that they are delivered from the hand of the enemy. Allow Your righteous right hand to cover them in their weakness. I thank You that Your hand is not so short it can’t reach where they are. By Jesus’ blood, I command the demonic spirits and the generational curse of addiction to be loosed from their assignment over __________.” This is releasing the blood of Jesus and casting your cares upon His shoulders. You cannot carry it.

In fact, because I have weakened myself unto death, I recognize a dead man cannot battle – he’s dead. If I’m dead (metaphorically speaking), Christ, who is my new life, causes me to be victorious even when I cannot see, taste, hear or feel it. It’s done. My warring is through the blood of Jesus, not the flesh; it is not of self-power but of Christ’s. My battling comes with ease in spirit, even when it isn’t necessarily easy for the outward man.

Learning how to battle the enemy through spiritual warfare versus fleshly warfare is a phenomenal element I was missing all my years growing up in a standard denominational church. First, one must begin with taking control of self and all the worldly thoughts that flood our minds day in and day out.

***

For we do not wrestle against flesh and blood, but against the rulers, against the authorities, against the cosmic powers over this present darkness, against the spiritual forces of evil in the heavenly places (Ephesians 6:12, NAS).”

I have been crucified with Christ; and it is no longer I who live, but Christ lives in me; and the life which I now live in the flesh I live by faith in the Son of God, who loved me and gave Himself up for me (Galatians 2:20, NAS).”

“Blessed is a man who perseveres under trial; for once he has been approved, he will receive the crown of life which the Lord has promised to those who love Him (James 1:12, NAS).”

 

Encouragement for Parents with Chronically Ill Children

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I’m baffled it’s already been three weeks since last I blogged, but that’s how it goes when you have a child who is perpetually dealing with various illnesses. I’m writing today just to share my heart. I think, no, I know there is a misconception floating around that those who are followers of Christ are never down, never upset, bothered, or affected by their surroundings. As a Christian author and minister, I teach with voracity how to overcome the obstacles of life and I purpose to live that which I preach to others.

Notwithstanding, people of the deepest levels of faith have bad days. Just because we function in absolute trust in the Lord does not mean we’re bubbly and overflowing with positivity like we live in a bubble. The bottom line is, there are days I cry or rather, days I want to cry but literally have no opportunity to do so. There are days when I am just shy of being overwhelmed by the situation. Case in point, Sophia has been throwing up 11 or 12 weeks to date. In that time, I’ve attended multiple meetings with the school, an attorney, doctors, and the superintendent in the attempt to fight the school system so as to keep them from calling truancy (which was successful), dealing with losing our insurance due to Michael having lost his job of 20 years the end of December, attempt to pay bills with money we do not possess because his new job won’t render any real money until May, run back and forth to MUSC (2 hours away) for multiple doc appointments, run a household as well as minister to others.

With all that, I have zero time with my husband – ZERO. Frankly, I miss him. He’s working long hours so as to build a sales clientele and, by the time he comes home, we try to spend time together as a family and then everyone passes out. We have lost all our saving paying for doctors and medication along with the loss of his job. In our nearly 16 years of marriage, we have had 1 vacation and that was a trip to the beach with two two-year-olds…not what I would call a vacation as that is a lot of work! Life is hard enough with a normal setting with healthy kids, but life with a chronically ill child – I have no words. I cannot properly express the exhaustion, sorrow, and altogether madness of dealing with the day to day. No one could possibly understand other than someone in these shoes.

Here is the “so what?” No, we are not to remain in a funk or depression as that is not of God. We are not to spread our sorrows to any listening ear. Yes, we are allowed days where we can admit to the difficulties. Confess there is a present struggle to someone you can trust who won’t be judgmental and will lend godly counsel as needed. Sometimes we simply need a friendly ear and prayer.

God is faithful. God is good and great and kind and merciful. Above all, God is loving. Knowing this, I am sustained. Knowing this, I am at peace. Knowing this, I can push through the worst of days. Knowing this, I maintain the Living Hope, which is Jesus Christ. Knowing this, I can allow myself a moment to cry or even a moment to be frustrated without beating myself with guilt for having a bad moment. The best of people can have the worst of days. Cut yourself some slack and then allow the hand of God to raise you in spirit, soul, body and mind. He is faithful.

I Peter 1:3-4: Blessed be the God and Father of our Lord Jesus Christ, who according to His great mercy has caused us to be born again to a living hope through the resurrection of Jesus Christ from the dead, to obtain an inheritance which is imperishable and undefiled and will not fade away, reserved in heaven for you.