wellness

Encouragement for Parents with Chronically Ill Children

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In my 50 years of life, jealousy has never been something to which I have commonly subscribed. I’m always elated to witness success and assist others so as to catapult them into greatness. That being said, having a chronically ill child has, on more than one occasion, provoked a spirit of jealousy within me. I deal with it in the throne room of grace, to be sure, as soon as I feel it. Nevertheless, the pangs of such a vile emotion rear their ugly head when I least expect it. When I see all around me the kids of friends, family, acquaintances and even strangers who are perfectly healthy and thriving, as awful to admit as it is, I feel the sensation of jealousy. It is not for money or possessions, but for good health for my daughter. I weep for my sweet Sophia as I know others weep for their suffering children.

From family to family, it’s a sliding scale of illnesses and severity but, I assure you, pain is pain. I don’t have less sorrow for my child than a parent of a child with cancer or more sorrow than a parent with a kid with an infection which is taking longer to subside than average. Hands down, it is all horrible watching your child suffer while other children run, play, go to school and do the things healthy kids do. Sophia has begun a two month regimen of medication specifically for her issues. It’s been two weeks and we’ve seen some improvement. She’s been getting caught up in some school work and able to spend time with friends here and there. It has been encouraging to watch as slow progress is still progress.

Yesterday, just as Michael and I had embarked on a much needed date night, we had just sat down at the restaurant to order and the phone rings. Sophia called bawling her eyes out because, while at her friend’s house, she threw up repeatedly and was in a lot of stomach pain. What’s more, she was/is very frustrated she can’t seem to kick this and the correlating problems. This morning at church, a friend was excited to revel in our mutual friend’s daughter’s achievements where she had deservedly, once again, taken 1st place. Of course, I am thrilled for my friend’s daughter; in fact, she’s my best friend. Our daughters are only a year apart and we are each other’s daughter’s god-mothers.

I thought to myself how astonishingly disgusting it was that I would feel such pain and jealousy for one I love so dearly; its a bit of a paradox. Even as I type, I weep at the unbearable thought that I would have such emotions. It was all I could do not to cry the entire service knowing my baby was hurting and feeling the way I did. Notwithstanding, the fact remains, people in my shoes do feel surges of jealousy with the desire for our kids to be able to enjoy childhood/teenhood just like everyone else’s kids.

Just the other day, a friend wrote asking me to pray for peace for her because she was feeling jealousy for reasons I just described. She is a follower of Christ and knows God has a perfect plan for her child, yet struggles with such feelings. She mentioned that watching photo after photo of other kids doing so well and having such joy brought her more pain.

I responded like this (roughly): “My personal peace comes from reminding myself that, at the conclusion of this part of Sophia’s life, it will catapult her right into the perfect will of God. If I may be frank, you do not need prayer for peace, you need to believe God has a plan and that it is good; belief is where the peace lies. I don’t know what God has designed for your daughter’s life, but a part of that is not you feeling devastated as if there’s no hope. I say this to you as I must daily remind myself.” Knowing, believing, trusting and accepting God does have a plan is the key. This knowledge is how I am able to:  

  1. Call myself to accountability in my incorrect emotions
  2. Pull down (away from) my mind all thoughts not of God
  3. Pull those thoughts into the obedience of Christ until my obedience is made complete
  4. Refuse to allow my mind to continue a process of comparing Sophia’s life to anyone else’s
  5. Remind myself God is faithful, He has a plan, He is in love with her and He purposes the best for her
  6. Believe all things work together for good for those who love God, for those who walk according to the Spirit
  7. Trust God with all my heart, soul, mind and strength – regardless of what my eyes see or emotions feel
  8. Reestablish peace that passes all understanding

If I may help you in any way, please reach out to me on Facebook, email or in the comments section. If there’s help for me and my child, there’s equal hope, help and peace for you. Jealousy of others will only lead to further destruction, chaos and confusion, it is a murdering spirit. Just because we feel something in a moment of weakness does not mean we have to allow it to overtake us. Focusing on the love of God chases out feelings which are not of God. Blessings!

Proverbs 14:30: “A heart at peace gives life to the body, but envy rots the bones.”